ESPE Abstracts

ESPE Abstracts

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hrp0097p1-368 | Sex Differentiation, Gonads and Gynaecology, and Sex Endocrinology | ESPE2023

Results of Empower-DSD: a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents

Neumann Uta , Wiegmann Sabine , Ernst Martina , Ihme Loretta , Wechsung Katja , Kalender Ute , Stöckigt Barbara , Richter-Unruh Annette , Holland Cindy , Hiort Olaf , Jürgensen Martina , Marshall Louise , Döhnert Ulla , Schneidewind Julia , Wagner Isabel , Rohayem Julia , Liesenkötter Klaus-Peter , Wabitsch Martin , Fuchs Malaika , Herrmann Gloria , Bauer Agnes , Haase Martina , Grau Anna , Klose Torben , Roll Stephanie , Schilling Ralph , Keil Thomas

Background: Within the government-funded project Empower-DSD, modular training programmes for children and young adults aged 6-24 years with the diagnoses CAH, Turner-syndrome, Klinefelter-syndrome or XX-/XY-DSD (including MRKH) and their relatives were developed to improve diagnosis-specific knowledge, skills and empowerment. Overall, 105 trainings were offered between August 2020 and September 2022 in 5 centres with DSD expertise in Germany.<p class="abs...
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ESPE Abstracts

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